Help Us Make New Guided Imagery for Traumatic Brain Injury | Print |  E-mail
Monday, 31 October 2011
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Hello again.

OK, we’re ready to create a new guided meditation to target Traumatic Brain Injury – this has been a long time in coming.  The Fort Sill study is winding down and this is the window we’ve been waiting for.

So this is our usual APB asking for your input.  This is how we get it right, to the extent that we do – by listening to you telling us what needs to be addressed on the recording. 

If you’re a health or mental health provider; if you’re someone who is dealing with this condition; or if you’re a family member or friend who’s been trying to help somebody with TBI, please send us your insights, observations and/or experiences. You don’t have to make sense out of them.  We’ll get enough info from enough people to be able to see common patterns and areas where everyone is affected.  

You can post your thoughts on this page or email me at info@healthjourneys.com.  We’ll make good use of this, I promise, if you’ve got the time to share your wisdom. 

As is always the case when we’re researching these topics, we’re interested in the neurophysiology, the symptoms, the internal, emotional impact, the social and behavioral fallout from having to deal with this, and the solutions, bright spots and assistance that made a dent. So any story, big or small, about any form of TBI, mild or severe, is most welcome and very gratefully accepted.  Thanks in advance.

And if you have the time and the interest, check out this new piece at Huffington Post which describes how far we've come with using guided imagery for cancer patients, and how much we've learned from some pretty dazzling immune system research. 

All best,



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Comments (8)Add Comment
...
written by Tammy, November 01, 2011
I have a story that might be helpful where I used guided imagery with a TBI client. Do not feel it would be appropriate to share it in an open forum. How can I do this. btw- I provided cognitive rehab for TBI's in a post acute, community setting from about 1976 to 2004. Wish your planned CD had been available then.
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written by Belleruth, November 01, 2011
Tammy, if you send your contact info (email, phone) to info@healthjourneys.com, I'll follow up as soon as I'm able.
Thanks much,
BR
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written by Deborah Lahey, November 01, 2011
I am a speech/language/cognitive therapist who works with TBI patients

Some thoughts:
"I will make my brain whole. I will engage my brain to make new connections.
I will open myself to find new ways of doing things."
...
written by Belleruth, November 03, 2011
I appreciate all the suggestions and personal stories that are coming in. Please don't stop! BR
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written by Jane Young hill, November 03, 2011
Things I have encountered in working with mTBI clients;
Consequences of head injury not showing on MRI or EEG leaves clients seen as confabulating and they are themselves confused at the changes they experience but often cannot articulate.
heightened hyper-vigilance
Sensory overload
irritability
debilitating fatigue
headaches
cognitive deficits
inattention
These post concussive issues are often very present but dismissed absent the baseline EEG.
Those who have obvious head injuries that are physically measurable, while very, very difficult, are at least acknowledged.
The confusion and despair of those suffering from the concussive impact not visable to doctors and family, are often given little comfort. the fear and despair can be overwhelming. These folks are a mystery to themselves.
I won't presume how to weave the ideas into a narrative for the CD, but they are real issues that can be addressed.
...
written by Elisa, November 08, 2011
I am still recovering from TBI and sent you an email through your info@healthjourneys.com address. For a while I thought I'd never work at my chosen profession again but by focusing on remembering who I am, I think I was able to improve faster and regain enough to start having a life again. Mindfulness practice helps immeasurably.
...
written by Louise, November 17, 2011
I have an adult son who has brain injuries, both ABI as a result of carbon monoxide poisoning as an infant, and TBI as a result of an assault by a methamphetamine intoxicated individual in a fast food place. I can tell you that there is a significant impact on the family when a brain injury occurs. The lost potential alone is heart wrenching. Because brain injury affects everyone differently depending on developmental factors or other existing vulnerabilities within the brain, the location and severity of the injury to the brain, etc. the sequelae of brain injury, especially when the effects of the injury are not "visible" is tremendous. Even a "mild TBI" (huge misnomer) is NOT MILD in it's impacts, either to the injured person or to their circle of relationships. A large percentage of our incarcerated population (25-87%) according to the CDC have brain injuries compared to 8.5% of the general population. Undiagnosed brain injury is a major cause of "social and vocational failure". 40% of students in Denver special education programs were ultimately determined to have brain injuries. It is not just our veterans returning from war that are affected by this and we need to do a better job educating professionals - no one anywhere from neuropsychologist to toxicologist to chiropractor to pediatrician to ER physician even mentioned the possibility of brain injury to us, either after the carbon monoxide poisoning or after the assault. We need to develop a more comprehensive approach that distinguishes between brain injury and PTSD, as well as other conditions that may exist or be exacerbated by a brain injury. I second everything that Jane Young Hill above said. It is devastating, not only for the person with the injury, but also for those who love them and are trying to identify the problem and promote healing. When a misdiagnosis (you do NOT do personality testing on someone with a brain injury, especially during certain stages of healing) becomes part of a permanently pathologizing record, it sets additional barriers to recovery in place. I recommend anyone who has experienced any trauma that might result in brain injury undergo SPECT scanning. It made a world of difference for my son to actually SEE with his own eyes the damage in his brain and to accept his limitations. We finally had an accurate diagnosis with appropriate recommendations that allowed him to begin to rebuild his life. It helped us see his behavior in a new light and to approach rebuilding the relationship from a more informed place. Thank you Belleruth for considering guided imagery as a contribution to healing for those with brain injuries.
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written by Katie Sheen, November 27, 2011
Dear Belleruth, I run a low-grade glioma brain tumour research & support charity called Astro Fund: are you including brain tumours in your definition of traumatic brain injury? I am thinking of those with low-grade (slow growing) brain tumours who live with the effects of surgery and radiotherapy for many years after the treatment. If so, I would be happy to publicise your call for input on our online support groups. Very best wishes, Katie Sheen. Founder, Astro Fund www.astrofund.org.uk

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