Thanks for All the Feedback! | Print |  E-mail
Sunday, 25 January 2009
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Thanks very much for all the comments, suggestions and critiques from people about their experiences with cancer treatment. There was a real consistency to them that, sadly, reflect we have a long ways to go still.  If oncology professionals have anything to add, please don’t hold back!  I’ll make good use of the feedback at the meeting I’ll be attending next week.

And speaking of oncology, do take a look at this week’s Hot Research.  It’s pretty exciting.  I don’t remember ever seeing this impressive a panel of bloodwork measures to test immune function after using relaxation and guided imagery – and the results are pretty terrific!  Pretty soon even the naysayers will be sitting up and taking notice.

The original article requesting cancer care feedback (as well as the reader comments that ensued) can be found here.

Don’t forget, we have a terrific new resource:  Dr. Lynn Joseph’s Emotional Renewal for Caregivers: Looking After Yourself While Helping a Loved One.  We get so many requests for help with the constant demands of caregiving -  from people looking after disabled kids, injured spouses, chronically ill parents and those who care for others in their work.  This is a superb, 7-track, guided imagery CD that targets caregiver stress in a wonderfully knowledgeable, compassionate and comprehensive way.  Lynn’s voice is ideally suited for guided imagery, and she encourages journaling after each experience. Segments include an Intro with Advice, and imagery segments for: Boosting Self-Love, Planning a Smooth Day; Healing Stressful Feelings; Connecting with Your Future Self; Sleeping Soundly; and much more. This woman understands caregiver stress and we’re proud to carry this fine resource.

OK, take care and be well.

All best,



 



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written by Michelle Marissa, January 27, 2009
I meant to comment on the oncology survey for your meeting next week, if it's not too late, I will now. I was caregiver to my mother, who had lung cancer and a sep. kidney cancer, each requiring its own surgery. The doctors were nonchalant about 'the process' and laughed at my concerns relative to the surgeries, they said it was "nothing" to them, just in a day's work – with no consideration to my feelings. When lung cancer returned and chemo, then radiation, happened ... there was no consideration to me as caregiver. All medical pros who dealt with my mother knew she was an extremely difficult and volatile person, and yet there was no offer to assist her or me. Chemo was given at the highest doses, rather than taking into consideration her condition, and the fact that the cancer was not recurring, as each CT showed. She suffered more from the effects of the chemo and radiation than from the cancer. She wanted desperately to live, and would not listen to suggestions to taper off for awhile. I sat in waiting rooms watching patients come and go from the beginning of their treatment, with major deterioration as months went by. People walked in, in the beginning, and were bent over in wheelchairs at the end, barely conscious of their surroundings. There was never mention of diet help or alternative holistic support. I was senior age myself, CFS/FM and other diseases to deal with, that continued to get worse each year. My mother's disease started in 1990, she died in 2004 ... it was a horribly long, and hopeless road to travel ... if she had not collapsed to the point of staying in bed, unable to go for more chemo, the doctors would have continued ... it's beyond time to discuss time to live, time to die, and what "quality of life" means. As well as what types of cancer relative to age of person, and overall health, means to treatment - and how aggressive the treatment is. I truly believe the meditation and healing tapes would slow down the need for such aggressive chemical treatment … but that would cut down income for these cancer clinics, wouldn't it!? I'm now about to be 69 years old and doing all I can to salvage what's left of my life and my health. The medication CD's have helped enormously, I've recommended them, as a dear friend recommended them to me. I have other comments relative to hospice care and what Medicare pays, enormous amounts, most of which could have gone to pay for alternative and holistic care that would be less expensive and create true quality of life.

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